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Berl, M. M., Goodkin, H. P., Kroner, B. L., Bumbut, A., Lapham, G., & Gaillard, W. D. (2017). Sudden death in epilepsy: Knowledge among pediatric providers. Journal of Pediatrics, 188, 291-+. https://doi.org/10.1016/j.jpeds.2017.05.036
A survey of 146 pediatric care providers (PCPs) revealed that 75.3% were unaware that children with epilepsy were at risk of death, specifically from sudden unexpected (or unexplained) death in epilepsy (SUDEP). PCPs assume that the treating neurologist discusses these risks. Increasing PCPs' knowledge of SUDEP will help address the care gap related to informing families about SUDEP.
