Carla J. DeMuro-Mercon

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Remote-use applications of the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised clinical outcome assessment tool: A scoping review

The limitations of EQ-5D as a clinical outcome assessment tool

Caregiver experiences and observations of intrathecal idursulfase-IT treatment in a phase 2/3 trial in pediatric patients with neuronopathic mucopolysaccharidosis II

Patient-reported experiences with refractory or unexplained chronic cough: A qualitative analysis

Psychometric evaluation of the respiratory syncytial virus infection, intensity and impact questionnaire (RSV-iiiQ) in adults

Evaluating elements of the care partner experience in individuals who care for people with Alzheimer's disease across the severity spectrum

Content validity of the Leicester cough questionnaire in adults with refractory or unexplained chronic cough: A qualitative interview study

Psychometric evaluation of an electronic Asthma Symptom Diary for young children

Qualitative assessment of the patient experience of primary hyperoxaluria type 1: An observational study

Understanding the patient experience and treatment benefits in patients with non-small-cell lung cancer with brain metastasis

Psychometric evaluation of the Symptoms of Infection with Coronavirus-19 (SIC): Results from a cross-sectional study and a phase 3 clinical trial

Assessing what matters to people affected by Alzheimer's disease: A quantitative analysis

Technical review of clinical outcomes assessments across the continuum of Alzheimer's disease

Assessing the patient experience of respiratory syncytial virus infection: Development of a patient-reported outcome measure

Development of patient- and observer-reported outcome measures to assess COVID-19 signs and symptoms in children and adolescents

Evaluation of measures for the assessment of covid-19 signs and symptoms in children and adolescents

Assessing clinically meaningful functional outcomes in preclinical Alzheimer's disease

Patient experiences with patient-reported outcome measures in metastatic breast cancer trials: qualitative interviews

Psychometric evaluation of a new electronic pediatric asthma symptom diary

Two years of COVID-19: What has been the global impact on HRQoL and clinical outcomes?