Search Results
Showing results 21 to 29 of 29.
Article
Effects of congenital Zika syndrome on feeding and growth: A longitudinal study
July 01, 2023
Article
GM1-gangliosidosis: The caregivers' assessments of symptom impact and most important symptoms to treat
February 01, 2023
Article
Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening
April 01, 2024
Article
Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review
May 21, 2020
Article
Specificity of early childhood hyperphagia profiles in neurogenetic conditions
May 01, 2024
Article
Parental coping with uncertainties along the severe combined immunodeficiency journey
October 27, 2022
Article
Preferences for accessing electronic health records for research purposes: Views of parents who have a child with a known or suspected genetic condition
December 01, 2020
Article
Feeding practices and weight status of children with congenital Zika syndrome: A longitudinal study in Brazil
September 01, 2024
Article
"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record
March 01, 2020