Melissa Raspa

RTI uses cookies to offer you the best experience online. By clicking “accept” on this website, you opt in and you agree to the use of cookies. If you would like to know more about how RTI uses cookies and how to manage them please view our Privacy Policy here. You can “opt out” or change your mind by visiting: http://optout.aboutads.info/. Click “accept” to agree.

Search Results

Filter by Type

Filter by Year

Filter by Focus Area

Filter by Solution

Filter by Center

Search Results

Promoting family outcomes in early intervention

Exploring the adult life of men and women with Fragile X syndrome: Results from a national survey

A voluntary statewide newborn screening pilot for spinal muscular atrophy: Results from early check

No change in the age of diagnosis for Fragile X Syndrome: Findings from a national parent survey

Early check: Translational science at the intersection of public health and newborn screening

Newborn Screening, Ethics, and Disability Studies

Decisional capacity for informed consent in males and females with fragile X syndrome

Attendance at fragile X specialty clinics: Facilitators and barriers

Functional skills of individuals with Fragile X Syndrome: A lifespan cross-sectional analysis

Family communication and cascade testing for Fragile X Syndrome

Parents' opinions about using their children's EMR for research: A continuum of perspectives across three genetic groups

DSM-5 Changes and the Prevalence of Parent-Reported Autism Spectrum Symptoms in Fragile X Syndrome

A SCID Compass Retrospective

Self-injurious behavior and Fragile X Syndrome: Findings from the National Fragile X Survey

Employment impact and financial burden for families of children with fragile X syndrome: Findings from the National Fragile X Survey

Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist-utility index

Public health literature review of Fragile X syndrome

Caregiver Burden in Fragile X Syndrome As A Function of A Health State Utility Index in the United States

Medication utilization for targeted symptoms in children and adults with fragile X syndrome: US survey

Health care for individuals with Fragile X Syndrome: Understanding access and quality