Don Bailey

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Evaluation of x-linked adrenoleukodystrophy newborn screening in North Carolina

North Carolina newborn exome sequencing for universal screening (NC nexus) detects molecular etiologies underlying inborn errors of metabolism and hearing loss

Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability

The North Carolina experience with mucopolysaccharidosis type I newborn screening

Early check: Translational science at the intersection of public health and newborn screening

Early check: Studying the benefits of early detection and intervention

The future of newborn screening: Why and how partnerships will be needed for success

Early check: A North Carolina research partnership

Early identification of fragile X syndrome through expanded newborn screening

A digital health app to assess decisional capacity to provide informed consent: Protocol for a randomized controlled trial

Developmental trajectories of executive functions in young males with fragile X syndrome

Skills attained by infants with congenital Zika syndrome: Pilot data from Brazil

A comparison of functional academic and daily living skills in males with fragile X syndrome with and without autism

Evaluating parents' decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: A randomized controlled trial protocol

A digital decision support tool to enhance decisional capacity for clinical trial consent: Design and development

Early check: A voluntary newborn screening program and research registry to facilitate clinical trials in pre-symptomatic infants with rare diseases

Values clarification exercises improved parental decision making about newborn genomic sequencing

Decision making in couples offered genomic sequencing for newborn screening: Outcomes of a surrogate, joint decision

Parental preferences toward genomic sequencing for non-medically actionable conditions in children: A discrete-choice experiment

The likely impact of congenital zika syndrome on families: Considerations for family supports and services