Early check: A voluntary newborn screening program and research registry to facilitate clinical trials in pre-symptomatic infants with rare diseases

Melissa R. Kick; Donald B. Bailey; Anne McCoy Edwards; Anne Caroline Wheeler; Lisa Marie Gehtland; Holly Landrum Peay; Martin Reinhold Pagter Duparc; Jacqueline Ellis Bagwell; Scott Michael Shone; Katherine Charlotte Okoniewski; Barbara Bowles Biesecker; Blake Harper; Melissa Kick Raspa; Jacqueline Ellis Bagwell; Martin Reinhold Pagter Duparc; Anne McCoy Edwards; Blake Harper; Katherine Charlotte Okoniewski; Scott Michael Shone; Anne Caroline Wheeler; Barbara Bowles Biesecker; Lisa Marie Gehtland; Holly Landrum Peay; PenaLd; C. Powell; Donald B. Bailey

Early check

A voluntary newborn screening program and research registry to facilitate clinical trials in pre-symptomatic infants with rare diseases

Raspa, M., Bagwell, J., Duparc, M., Edwards, A., Harper, B., Okoniewski, C., Shone, S., Wheeler, A. C., Biesecker, B., Gehtland, L., Peay, H., PenaLd, Powell, C., & Bailey, D. B. (2018). Early check: A voluntary newborn screening program and research registry to facilitate clinical trials in pre-symptomatic infants with rare diseases. Value in Health, 21, S52. https://doi.org/10.1016/j.jval.2018.04.433