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Search Results

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Melissa Raspa
EXPERT

Melissa Raspa

Showing results 1 to 20 of 86.

Article

Evaluating sensory processing in Fragile X Syndrome: Psychometric analysis of the Brain Body Center Sensory Scales (BBCSS)

June 01, 2018
Article

Medication utilization for targeted symptoms in children and adults with fragile X syndrome - U.S. survey

January 01, 2012
Article

Where do we go from here? The need for genetic referrals in patients who are deaf or hard of hearing: Findings from a regional survey

June 01, 2018
Article

A literature review of the economic burden of fragile X syndrome

April 24, 2018
Article

Seizures in fragile X syndrome: Characteristics and comorbid diagnoses

November 01, 2010
Article

A digital health app to assess decisional capacity to provide informed consent: Protocol for a randomized controlled trial

November 19, 2018
Article

A description of the educational setting among individuals with fragile x syndrome

January 01, 2019
Article

Co-occurring conditions associated with FMR1 gene variations: findings from a national parent survey

August 15, 2008
Article

Employment impact and financial burden for families of children with fragile X syndrome

October 01, 2010
Chapter

Promoting family outcomes in early intervention

January 01, 2011
Article

Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

October 01, 2020
Article

Implications of the FMR1 premutation for children, adolescents, adults, and their families

June 01, 2017
Article

Prevalence, Nature, and Correlates of Sleep Problems Among Children with Fragile X Syndrome Based on a Large Scale Parent Survey

May 01, 2010
Event

American Society of Human Genetics (ASHG) Annual Meeting 2023

November 01, 2023
Cover image for publication: Making clinical trials more patient-centered using digital interactive e-consent tools
RTI Press Publication

Making clinical trials more patient-centered using digital interactive e-consent tools

October 21, 2019
Article

A comparison of functional academic and daily living skills in males with fragile X syndrome with and without autism

July 01, 2018
Article

Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome

November 01, 2013
Article

Expert evaluation of strategies to modernize newborn screening in the United States

December 29, 2021
Article

A digital decision support tool to enhance decisional capacity for clinical trial consent: Design and development

June 06, 2018
Article

Clinical models of telehealth in genetics: A regional telegenetics landscape

June 01, 2019