Search Results
Article
Preferences for accessing electronic health records for research purposes: Views of parents who have a child with a known or suspected genetic condition
December 01, 2020
Article
Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder
October 01, 2020
Article
Parental views on newborn next generation sequencing: Implications for decision support
July 01, 2020
Article
Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review
May 21, 2020
Article
Formative research to develop a clinical trial decision aid that integrates quantitative patient preference data
May 01, 2020
Article
"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record
March 01, 2020