Rebecca R. Moultrie

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Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"

Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes

Benefit-risk preferences of patients for the use of artificial intelligence and ultrasound imaging in different settings in echocardiography

Managing uncertainty and responding to difficult emotions: Cancer patients’ perspectives on clinician response during the COVID-19 pandemic

Oncology patients' communication experiences during COVID-19: Comparing telehealth consultations to in-person visits

Education and consent for population-based DNA screening: A mixed-methods evaluation of the Early Check Newborn Screening Pilot Study

Patients' experiences with cancer care: Impact of the COVID-19 pandemic

Outreach to new mothers through direct mail and email: Recruitment in the Early Check research study

Barriers and facilitators to genetic service delivery models: Scoping review

Preferences for accessing electronic health records for research purposes: Views of parents who have a child with a known or suspected genetic condition

Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

Parental views on newborn next generation sequencing: Implications for decision support

Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review

Formative research to develop a clinical trial decision aid that integrates quantitative patient preference data

"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record

Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability

Early check: Translational science at the intersection of public health and newborn screening

Factors affecting the communication experiences of newly diagnosed colorectal cancer patients

A digital decision support tool to enhance decisional capacity for clinical trial consent: Design and development

An evidence-based, community-engaged approach to develop an interactive deliberation tool for pediatric neuromuscular trials