Anne Wheeler

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Pilot protocol for the parent and infant inter(X)action intervention (PIXI) feasibility study

Developmental skills of individuals with Angelman Syndrome assessed using the Bayley-III

Research gaps in fragile x syndrome: An updated literature review to inform clinical and public health practice

The International Fragile X Premutation Registry: Building a resource for research and clinical trial readiness

A multidisciplinary approach and consensus statement to establish standards of care for Angelman syndrome

Outreach to new mothers through direct mail and email: Recruitment in the Early Check research study

Emergence of developmental delay in infants and toddlers with an FMR1 mutation

A voluntary statewide newborn screening pilot for spinal muscular atrophy: Results from early check

Preferences for accessing electronic health records for research purposes: Views of parents who have a child with a known or suspected genetic condition

Introduction to special issue on outcome measures for IDD: Where we have been, where we are now, and where we are heading

Comprehensive assessment of individuals with significant levels of intellectual disability: Challenges, strategies, and future directions

Outcome measures for core symptoms of intellectual disability: State of the field

Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

Factor structure of the aberrant behavior checklist in individuals with fragile X syndrome: Clarifications and future guidance

Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review

Developmental outcomes among young children with congenital Zika syndrome in Brazil

Decisional capacity for informed consent in males and females with fragile X syndrome

"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record

Food and non-food-related behavior across settings in children with Prader-Willi syndrome

Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability