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Article
Parental coping with uncertainties along the severe combined immunodeficiency journey
October 27, 2022
Article
Education and consent for population-based DNA screening: A mixed-methods evaluation of the Early Check Newborn Screening Pilot Study
May 12, 2022
Article
Attitudes about analytic treatment interruption (ATI) in HIV remission trials with different antiretroviral therapy (ART) resumption criteria
May 01, 2022
Article
Parent attitudes and perceptions after receiving Fragile X premutation results in the Early Check Newborn Screening Pilot Study (eP300)
March 01, 2022
Article
Severe combined immunodeficiency: Knowledge and information needs among healthcare providers
February 21, 2022
Article
Using a patient portal to increase enrollment in a newborn screening research study: Observational study
February 10, 2022