Search Results
Article
A digital health app to assess decisional capacity to provide informed consent: Protocol for a randomized controlled trial
November 19, 2018
Article
Developmental trajectories of executive functions in young males with fragile X syndrome
October 01, 2018
Article
Skills attained by infants with congenital Zika syndrome: Pilot data from Brazil
July 26, 2018
Article
A comparison of functional academic and daily living skills in males with fragile X syndrome with and without autism
July 01, 2018
Article
Evaluating parents' decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: A randomized controlled trial protocol
June 28, 2018
Article
A digital decision support tool to enhance decisional capacity for clinical trial consent: Design and development
June 06, 2018
Article
Early check: A voluntary newborn screening program and research registry to facilitate clinical trials in pre-symptomatic infants with rare diseases
May 01, 2018
Article
Values clarification exercises improved parental decision making about newborn genomic sequencing
April 01, 2018
Article
Decision making in couples offered genomic sequencing for newborn screening: Outcomes of a surrogate, joint decision
April 01, 2018
Article
Parental preferences toward genomic sequencing for non-medically actionable conditions in children: A discrete-choice experiment
February 01, 2018
Article
The likely impact of congenital zika syndrome on families: Considerations for family supports and services
February 01, 2018