Don Bailey
919-541-6488

Don Bailey

Distinguished Fellow, Early Childhood Development

Don Bailey, PhD, is internationally known as an expert on young children with disabilities. For 27 years, he was on the faculty of the University of North Carolina at Chapel Hill where he was a W.R. Kenan, Jr. Distinguished Professor and, for 14 years, director of the Frank Porter Graham Child Development Institute. Dr. Bailey's research addresses early identification and early intervention for children with disabilities, as well as family adaptation to disability. For 20 years, his work has focused on children with fragile X syndrome, the leading inherited cause of intellectual impairment, and their families. He has an extensive record of publications, with more than 200 peer-reviewed articles, chapters, and books on a wide variety of topics related to early education, early intervention, disability, and family support. In 2006, Dr. Bailey received the Career Research Scientist Award from the Academy on Mental Retardation. From 2006 to 2009, he served as president of the board of directors of the National Fragile X Foundation (www.fragileX.org). Recently, he was appointed to serve a 4-year term on the DHHS Secretary's Advisory Committee on Heritable Disorders in Newborns and Children.

Education

PhD, Early Childhood Special Education, University of Washington; MEd, Early Childhood Special Education, University of North Carolina at Chapel Hill; BA, Psychology, Davidson College.

Latest Publications

Can a decision aid enable informed decisions in neonatal nursery recruitment for a fragile X newborn screening study? — Genetics in Medicine
Bailey, D.B., Bann, C., Bishop, E., Guarda, S., Barnum, L., & Roche, M. (Apr 2013)
Design and evaluation of a decision aid for inviting parents to participate in a fragile X newborn screening pilot study — Journal of Genetic Counseling
Bailey, D.B., Lewis, M.A., Harris, S.L., Grant, T., Bann, C., Bishop, E., Roche, M., et al. (Feb 2013)
Obtaining consent from both parents for pediatric research: What does “reasonably available” mean? — Pediatrics
Nelson, D.K., Skinner, D., Guarda, S., Choudhury, S., Sideris, J., Barnum, L., Haagen, K.T., Heyward, Q., & Bailey, D.B. (Jan 2013)
FMR1 CGG allele size and prevalence ascertained through newborn screening in the United States — Gastroenterology
Tassone, F., Long, K.P., Tong, T.-.H., Lo, J., Gane, L.W., Berry-Kravis, E., Nguyen, D., Mu, L.Y., Laffin, J., Bailey, D.B., et al. (Dec 2012)
Health and economic consequences of Fragile X syndrome for caregivers — Journal of Developmental and Behavioral Pediatrics
Bailey, D.B., Raspa, M., Bishop, E., Mitra, D., Wheeler, A., & Sacco, P. (Nov 2012)
View all publications by Don Bailey